We're not waiting for a cure.
We're powering it.

Twenty-five years building the infrastructure of a cure.
The science is ready. The community is ready.

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Voices of CMT

Real life with CMT, straight from the community

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Three ways to power the cure

Find your path

Living with CMT

You're not alone.

Understand your diagnosis, find a specialist, and manage daily life with CMT.

Start here → Science and Industry

The patient is the platform.

Access the world's most comprehensive CMT patient registry. Partner with TRIAD. Engage accredited clinical sites.

Partner with us → Support the Cure

Acceleration, not charity.

Your investment funds the infrastructure that gets therapies to patients faster.

Why HNF

Built to outlast the wait.

In partnership with researchers, clinicians, and industry worldwide

Before HNF, none of this existed.

Global patient registry
FDA patient dialogue
Largest CMT biobank
Digital biomarker tools
Onsite summit research

HNF built all of it. First.

See our full timeline of firsts →

Join GRIN

Your Data. Your Cure.

Join GRIN, the Global Registry for Inherited Neuropathies. Your genetic data directly accelerates therapy development for your CMT subtype.

News & Stories

Latest from HNF

ENCell's EN001 Enters Phase 2a Trials for CMT1A

A South Korean biotech, ENCell, has dosed the first patient in a Phase 2a trial of EN001, a stem cell therapy aimed at the myelin damage behind CMT1A.

Read more → May 21, 2026

HNF to Host FDA Patient Listening Session for CMT-SORD

HNF is hosting an FDA Patient Listening Session for the CMT-SORD community on August 4, giving patients and caregivers a direct line to the agency at a critical moment for the subtype.

Read more → May 21, 2026

Thank You for an Incredible 2026 CMT Clinical Trial Readiness Summit

Over 200 attendees made the 2026 CMT Summit our biggest gathering yet. Thank you to our sponsors, speakers, research participants, and every member of the community who came.